JOIN OUR BOARD OF DIRECTORS

Want a seat at the table?

The DESSH Foundation is accepting applications to join our Board of Directors, the main governing body of the foundation. If you or someone you know has interest, please send a letter of intent and/or resume to Caitlin@DESSH.org.

 
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ABOUT DESSH

DeSanto-Shinawi Syndrome is a rare and newly discovered genetic disorder characterized by a mutation of the WAC gene. It has been identified in less than 100 people worldwide. Patients exhibit dysmorphic features including a broad or prominent forehead, synophrys and/or bushy eyebrows, depressed nasal bridge, and bulbous nasal tip.

 

ABOUT THE FOUNDATION

The DESSH Foundation was established to raise awareness of DeSanto-Shinawi Syndrome (DESSH) among the medical profession and the general public, to advance research and education related to DESSH, and to provide a support-community for patients and families challenged by DESSH.

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